Digital
Meeting the
Health Care Needs of California’s Children: The Role of Telemedicine
“By bringing doctors and other
health care professionals to the community, telemedicine delivers high-quality
health care for children. Telemedicine is helping us build an efficient health
care system organized around meeting the needs of
— Thomas S. Nesbitt, M.D., M.P.H., Executive Associate Dean, Administrative and Clinical
Affairs, UC Davis
Quality health care no longer requires a health care provider and patient to be in the same room at the same time. With the advancement of Information and Communications Technology (ICT),* children and adults can receive high-quality health care from a distance through telemedicine. [Information and Communications Technology (ICT) includes, but is not limited to, the Internet, computers, hardware, software applications, telecommunications technology, advanced media technology, and hand-held devices. For the purposes of this issue brief, ICT also includes other technologies utilized for telemedicine and telehealth applications, such as remote monitoring devices, electronic clinical equipment, and other emerging technologies used to improve the health of individuals.] In fact, telemedicine is rapidly becoming a viable solution to meeting the health care needs of patients in rural and other underserved areas. Telemedicine also brings additional benefits, such as reduced patient costs for travel, reduced absences from school and work to go to medical appointments, health system efficiencies and potential cost savings from improved care management and coordination, and local economic gains as residents remain in the community for care.
Despite the growth of telemedicine in California and nationally and its recognized potential to increase access to and efficiency of delivering health care in rural and other underserved areas, there has been little discussion of how it can and should be used to improve the health care and health of children.
The Children’s Partnership developed this issue brief to inform leaders and the public of how telemedicine, when applied appropriately, can address the health care needs of California’s children, particularly those who are low income and living in medically underserved areas. This brief provides an overview of the benefits of telemedicine for children and families, health systems, and communities; outlines challenges to successful adoption of telemedicine; and provides concrete recommendations for ensuring that telemedicine reaches its full potential in meeting the health care needs of California’s most vulnerable children.
Telemedicine Helps
Kyle Gonyon, a 16-year-old who was born with a disorder of the central nervous system and cerebral palsy, requires multiple pediatric subspecialists to care for his health problems related to these diseases, including orthopedic and gastrointestinal problems and a severe seizure disorder. Kyle lives in Redding, California, where he sees his primary care and orthopedic doctors. However, his mother, Michelle, and Kyle have traveled as much as 320 miles in a day to see various pediatric subspecialists. Kyle’s most frequent health care need is a neurologist to manage his seizure disorder. In the past, Michelle and Kyle have traveled a full day by car to see the neurologist. Now Kyle sees a neurologist 600 miles away at Cedars-Sinai Medical Center in Los Angeles through telemedicine based at Shasta Community Health Center in Redding—a ten minute drive from Michelle and Kyle’s home. While Michelle and Kyle still need to travel long distances a few times a year to see other specialists, telemedicine has cut their travel time by more than half.
“Telemedicine has been a life saver. Kyle is getting the health care he needs without us having to travel two to three hours one-way, sometimes, to be told that nothing has changed.”
—Michelle James, mother of Kyle
What
Is Telemedicine?
Telemedicine is the use of ICT to provide health care services at a distance. A closely associated term is telehealth, which encompasses a broader definition of remote health care that includes nonclinical services, such as patient education, disease self-management, and medical training for providers. [Endnote 1] Telemedicine and telehealth involve the utilization of ICT to provide a wide array of health services to individuals without requiring the individual to interact face-to-face with the health care provider delivering the care. Common applications of telemedicine and telehealth include videoconferencing between a patient and health care provider for a consultation or among groups of patients or providers for education, support, and care coordination; transmission of data, such as x-rays, photographs, video, and audio files; remote monitoring of vital signs and other health indicators; and Internet applications for patient education and disease management.
An example of a typical application of telemedicine involves a patient at a health care facility in a rural or medically underserved area, where the type of provider the patient needs is not available. Such a facility is commonly known as a spoke site. [Endnote 2] The spoke site, using ICT, links to what is known as a hub site—where the consultative services are provided. [Endnote 3] [While the terms hub and spoke originated from a model where a large urban medical center served as the hub and smaller health centers, such as rural hospitals and clinics, served as the spokes, these terms have evolved. For the purposes of this issue brief, spoke refers to the site where the patient is located and hub refers to the site where the provider with whom the patient is connecting is located. Hubs can serve as spokes and spokes can be hubs, as needed.] In a typical telemedicine encounter, the primary care physician at the spoke manages the patient’s care and uses telemedicine to link to a specialist at the hub as needed for the patient’s particular condition(s).
Telemedicine interactions often occur between two health care sites, such as a clinic and a hospital. However, the technology involved in telemedicine allows providers and patients to be almost anywhere, such as a child’s home, a school, a child care center, or a juvenile detention center. Physicians can even attend to emergencies from their homes, using ICT, instead of or before going to the hospital to care for a patient. [Endnote 4]
Telemedicine can occur in “real time,” where the patient at the spoke and the provider at the hub interact simultaneously. [Endnote 5] Videoconferencing is the most common real-time telemedicine interaction. Telemedicine also occurs in the format of “store-and-forward.” A store-and-forward interaction involves the transfer of data, such as an x-ray or a digital image, from the spoke to the hub for review and consultation at a later time. [Endnote 6]
What
Technologies Are Used in Telemedicine?
While telemedicine relies on a number of technologies, telecommunications technology is necessary to enable communication between two or more sites. Although Plain Old Telephone Service (POTS) and Integrated Service Digital Network (ISDN) are sufficient for many telemedicine interactions [ISDN is a system of digital phone connections, which can transmit voice, data, and video simultaneously over a connection.] they are limited in their ability to support more complex telemedicine applications, such as videoconferencing between more than two sites and transferring medical images at the level of quality needed for accurate diagnoses. Such applications rely on a high- speed Internet connection, or broadband. Broadband refers to a high-speed, always-on connection to the Internet, which enables information to be transferred with very little delay in receiving or sending. [Endnote 7] For optimal telemedicine performance, the broadband connection must be of sufficient bandwidth to enable all connection points to send and receive large amounts and complex sets of data quickly and accurately. Security measures must also be in place to ensure that data are transferred only to the intended recipients, protecting patients’ privacy.
Telemedicine also involves the use of an ever-growing menu of software and technological devices, including videoconferencing equipment; digital cameras; electronic clinical devices, such as digital stethoscopes; and disease management and health education software. Increasingly, telemedicine involves the use of wireless devices, such as cell phones and Personal Digital Assistants (PDAs), to exchange data.
Why
Does Telemedicine Matter for Children?
Low-income children living in medically underserved areas, including rural and parts of urban areas, face geographic and economic barriers to accessing health care. Telemedicine is a tool to help them obtain care they would otherwise face great difficulty accessing.
Health care provider shortages are a major factor impacting access to care. Twenty percent of California’s population, including 35 percent of those living below the Federal Poverty Level (FPL) and nearly 2.4 million children, live in federally designated shortage areas for health care. [Endnote 8] [The Federal Poverty Level in 2008 is $17,600 annually for a family of three.] There is a particular shortage of pediatric subspecialists across the state and the nation. [Endnote 9]
and it also has fewer than the national rate.
Provider shortages are markedly more prevalent in rural areas. [Endnote 11] Therefore, while the shortage of pediatric subspecialists affects children in both urban and rural areas, children in rural areas have even less access to these providers. Even general pediatricians can be hard to find in rural areas. For example, between 1981 and 1996, there was a 73 percent increase of pediatricians, but the percentage of pediatricians practicing in rural areas remained low, with only 8.1 percent of general pediatricians located in rural counties, where 20 percent of the U.S. child population lived. [Endnote 12]
Provider shortages are compounded for children enrolled in Medicaid due to low Medicaid reimbursement rates. Medi-Cal, [Medi-Cal, California’s Medicaid program, provides health and long-term care coverage to low-income children, their parents, and elderly and disabled Californians. ] California’s Medicaid program, pays physicians 59 percent of Medicare rates for the same service, below the national average of 69 percent. [Endnote 13] Medicaid is the largest source of health insurance for low-income children, and children in rural areas are enrolled in Medicaid at a higher rate than those in urban areas. [Endnote 14] As a result, low-income children living in rural areas face greater challenges in
obtaining pediatric care.
The location of where providers practice, even if there is sufficient supply, also affects access to care, especially for patients living in rural areas. The majority of pediatric subspecialists practice within academic medical systems and regional pediatric tertiary centers, which are usually not in remote areas, with only about 4 percent based in rural areas. [Endnote 15] While it may make sense for these providers to be located at pediatric tertiary centers for reasons related to demand and quality, it means patients in rural areas must travel greater distances to see subspecialists.
As a result of these shortages and the regionalization of pediatric subspecialists around pediatric tertiary centers, families may need to travel long distances for care and miss hours, or even days, of school and work. For example, a study conducted by the University of California (UC), Davis, found that 83 percent of parents of children with special health care needs said their drive to the specialist took more than one hour, and 40 percent missed work for their child’s appointment. [Endnote 16]
Access to Health and Dental Care for
According to the
Children, ages 0-18, who didn’t have a doctor’s visit in the last year: 1,284,000 (12.3%)
Children in families with incomes below 200% FPL,
ages 0-18, who didn’t have a doctor’s visit in the last year: 686,000 (15.3%)
According to the American Dental Association,
children should have a dental visit by their first birthday. [Endnote 19]
Children, ages 2-11, who have never been to a
dentist: 1,451,000 (24.1%)
Children in families with incomes below 200% FPL,
ages 2-11, who have never been to a dentist: 676,000 (25.6%)
Extensive travel to access health care can be particularly burdensome for low-income families. Aside from the inconvenience, many low-income families do not have affordable transportation options, although Medicaid pays for some transportation. [Endnote 20] Nationally, 956,584 children received delayed health care due to lack of transportation in 2002. [Endnote 21] In addition, low-income workers are more likely to lose pay when they miss work. For example, a survey conducted by the Henry J. Kaiser Family Foundation found that two-thirds of low-income women (family incomes below 200 percent of FPL) and three-quarters of very poor women (family incomes below 100 percent of FPL) do nget paid when they miss work to care for a sick child. [Endnote 22]
History of Telemedicine
The use of ICT in the field of health is not new. For example, telemedicine, using videoconferencing, began in the 1950s. However, the use of telemedicine grew rapidly in the 1990s due to the increased availability of low-cost, high-quality computers and high-speed Internet, as well as the development of new technology tools to support high-quality and efficiently-delivered health care. [Endnote 23]
Legislation: The Telemedicine Development Act (TDA) of 1996 was one of the first and most comprehensive telemedicine laws in the country and has been used as a model for other states’ telemedicine laws. This legislation prevents private and public health insurers from requiring face-to-face contact between providers and patients and requires insurers to adopt reimbursement policies for telemedicine services. [Endnote 24]
Medi-Cal: In compliance with the TDA, California was among the first states to adopt telemedicine reimbursement policies in its Medicaid program (Medi-Cal). Compared to other states, Medi-Cal has a relatively comprehensive telemedicine policy, such as reimbursing both the hub and spoke and reimbursing for some store-and-forward services. [Endnote 25] In 2005, California enacted legislation to expand the Medi-Cal telemedicine reimbursement policy to include teledermatology and teleophthalmology via store-and-forward. [Endnote 26] Finally, legislation was enacted in 2007 to include optometry in the definition of health care practitioners for the purpose of telemedicine so that optometrists can be reimbursed by payers, including Medi-Cal, for providing care via telemedicine. [Endnote 27]
Healthy Families: [Healthy Families is a federal/state partnership to provide health, dental, and vision coverage to children in California who do not have health insurance and do not qualify for free Medi-Cal.] The Healthy Families Program has advanced telemedicine in the state through the Rural Health Demonstration Projects (RHDP), legislatively authorized projects designed to fund rural collaborative health care networks to alleviate unique problems of access to health care in rural areas.
[Endnote 28] Since 1999, the Healthy Families Program has awarded RHDP funding to Blue Cross of California for a series of telemedicine projects. Blue Cross of California has used this funding to develop and manage a statewide telemedicine network. In addition, Blue Cross of California provides enhanced reimbursement for telemedicine services. The telemedicine network currently supports 65 telemedicine sites in 28 California counties and was used in nearly 2,000 patient encounters in 2006, including, but not limited to, Healthy Families enrollee encounters. Psychiatry and dermatology have accounted for the majority of specialty encounters over the network since 1999. [Endnote 29]
CTEC: With funding from California’s major health foundations, the California Telemedicine and eHealth Center (CTEC) has been facilitating and supporting telemedicine programs throughout the state by providing funding, training, and education since 1997. CTEC currently supports ten telemedicine networks linking to more than 100 remote health care sites. [Endnote 30] CTEC also supports the Telemedicine Learning Center at UC Davis, which has provided telemedicine training to more than 1,000 health care providers, and recently funded UC San Diego to develop a Southern California Telemedicine Learning Center. [Endnote 31]
NATIONAL
Government: Though the military, Veteran’s Administration, and other federal entities have been using telemedicine for years, the Office for the Advancement of Telehealth, now under the Health Resources and Services Administration, was established in the early 1990s to offer telehealth grants, provide technical assistance, and evaluate telehealth applications. [Endnote 32]
Providers and Advocates: Professional associations formed to promote telemedicine deployment, such as the American Telemedicine Association in 1993 and the Association of Telemedicine (now Telehealth) Service Providers in 1996. [Endnote 34]
Other States: As of 2005, 34 states provide some level of Medicaid reimbursement for health services provided through telemedicine. Five states, including California, require private payer reimbursement for telemedicine.
[Endnote 35]
Children with Special Health Care Needs
(CSHCN) [Endnote 36]
CSHCN with any unmet needs for specific health
care services: 17.5% in
CSHCN needing a referral who have difficulty getting it: 27.6% in
CSHCN without a usual source of care when sick (or who rely on
the emergency room): 7.4% in
The result is that, with limited alternatives, low-income parents in rural areas are more likely to rely on emergency department services to care for their child, see a primary care doctor who may not have the skills or expertise to treat the complex conditions their child presents, or delay or go without care altogether. [Endnote 38]
Telemedicine can help overcome these barriers by allowing patients to receive care in their local community and providers to deliver care at their usual places of practice.
How Can Telemedicine Improve Care for
Children and Families?
Telemedicine can improve the health of children living in rural and medically underserved communities by providing access to quality health care and facilitating coordinated care for complex conditions. Telemedicine is used to screen, diagnose, treat, and monitor a wide range of pediatric health conditions from common childhood illnesses, such as strep throat and asthma, to conditions requiring specialty care in such fields as dermatology, endocrinology, emergency and critical care, neurology, gastroenterology, obesity, radiology, pathology, oral health, and psychiatry. [Endnote 39] Telemedicine and telehealth applications help providers and patients manage the patient’s health, reducing the need for more complex and costly hospital visits and health treatments later. Telemedicine can also promote health care efficiency by improving screening and triage processes and helping to assure patients see an appropriate provider when needed and avoid unnecessary visits when not needed. In addition, telemedicine and telehealth technologies can be used to improve health care quality by facilitating medical education, particularly for rural providers.
Emergency and Critical Care: Telemedicine is increasingly becoming a tool to treat children in hospitals, especially critically ill children. Many hospitals in rural and remote areas do not have the volume of pediatric patients or resources to support pediatric emergency and critical care services. Telemedicine can be used to meet the pediatric care needs of these hospitals. [Endnote 40] For example, UC Davis Children’s Hospital in Sacramento, California has used telemedicine to facilitate the availability of emergency and critical care consultations to a rural hospital in Northern California 24 hours a day, 7 days a week by installing telemedicine equipment at UC Davis’ pediatric intensive care unit and in the homes of its pediatric critical care physicians. In addition to improving care quality, this application of telemedicine enables children to be screened and triaged so that they can stay in their local community when appropriate, avoiding high transportation costs and separation from families. [Endnote 41] Consulting with pediatric critical care physicians via telemedicine can also help the referring hospital to stabilize a child before and during transfer to a pediatric emergency services department. [Endnote 42]
“Through telemedicine, children at our clinic are receiving regular care for chronic conditions, such as seizure disorders and behavioral health problems, from pediatricians who live hundreds of miles away. Telemedicine also helps our clinics make the delivery of health care more efficient, reducing travel and related costs for both parents and providers, by enabling our ten different clinic sites to link to each other and share each others’ health providers.”
—Becky Coke, LVN, Telemedicine Coordinator,
Oral Health: Telemedicine can also be used to help children with needed dental screenings, treatment, and referrals. In California, a pediatric teledentistry program was launched in three school districts in 2006 to meet the dental health care needs of underserved children in Tulare County. Dentists from Childrens Hospital Los Angeles/University of Southern California (USC) School of Dentistry supervise an on-site hygienist, provide remote oral examinations and patient education, and develop a treatment plan for the child. [Endnote 43] An evaluation of a teledentistry program in Rochester, New York that connects six inner-city elementary schools and seven child care centers to the Eastman Department of Dentistry at the University of Rochester found that the children who participated in the project most likely would never have received a dental screening at an early age, nor would their parents have received feedback on the need for dental care, were it not for the program. [Endnote 44] A study of the program found that nearly 40 percent of 162 toddlers suffered from tooth decay. Early detection of such decay can prevent the child from painful and costly problems, visits to the emergency room, and extractions of teeth. [Endnote 45]
Vision Screening: Telemedicine is also used to screen children for early detection and treatment of vision problems, which have been known to affect academic performance. [Endnote 46] A program of the University of Tennessee equips a mobile van with vision screening equipment to provide real-time vision screenings to children in parts of Tennessee and Mississippi. Examinees with vision problems are referred to eye professionals, and the exams that are ambiguous are sent via store-and-forward to specialists for a detailed reading, diagnosis, and referral, as necessary. [Endnote 47]
Mental Health: Mental health care is particularly suitable to telemedicine because of the ease of videoconferencing. Shasta Community Health Center in Redding, California has been using telemedicine to meet the mental health care needs of its patients for the past seven years because there are no child psychiatrists within hundreds of miles of the center. Through videoconferencing, they connect children to child psychiatrists at Cedars-Sinai Medical Center in Los Angeles and Kings View Corporation Behavioral Health Clinic in Fresno. In 2006, they facilitated approximately 345 telepsychiatry visits, which included child psychiatry. [Endnote 48]
Telepharmacy: Many small hospitals and clinics in rural and medically underserved areas cannot sustain 24-hour pharmacists. Using ICT, these facilities can be staffed with a nurse, or other more available and less costly health professional, and connect to pharmacies that are staffed 24-hours with pharmacists. For example, UC Davis Health System piloted a telepharmacy program, linking six rural hospitals to the UC Davis Health System in Sacramento. While these hospitals all had on-site pharmacies, they did not have the resources or capacity to staff a pharmacist after regular business hours. To meet the needs of these hospitals after hours, hospital staff faxed their medication orders to UC Davis Health System’s pharmacy for a pharmacist to review and verify. A nurse at the remote site then pulled the medications from the pharmacy shelves and contacted the UC Davis Pharmacy via a videoconferencing system, which enabled the UC Davis pharmacist to see medication labels and verify the medication and strength. This endeavor was a one-year pilot, but met such a great need that UC Davis has developed a system where the hospitals can continue to purchase pharmacy services through the Remote Telepharmacy Program. [Endnote 49]
Children with Special Health Care
Needs: Children with special health care needs, such as autism, genetic diseases, mental retardation, depression, anxiety, and behavioral problems, often require multiple and coordinated health and related services on an ongoing basis from a multidisciplinary set of providers. [Endnote 50] Telemedicine can be especially valuable for children with special health care needs who live in rural or medically underserved areas because of the lack of pediatric subspecialists in these areas. [Endnote 51]
Home Health Care: Telehealth technology has helped improve the lives of families of chronically ill children by allowing them to keep their children at home. Remote monitoring devices can alert parents and providers when a health indicator, such as heart rate, shows a significant change. Videoconferencing can allow providers to see their patients without the patients having to travel. This is especially beneficial for chronically ill children who may need multiple interactions with their providers. [Endnote 53]
Child Abuse Evaluations: Telemedicine applications are being used to protect children by conducting child abuse consultations and examinations at a distance. A program in rural Florida uses specialized cameras and teleconferencing to allow medical staff at remote locations to conduct live child abuse assessments with child abuse experts at a hub site. Input from child abuse experts is oftentimes critical to ensure sensitivity, thoroughly conducted exams, and proper documentation of evidence. A similar project exists in California through the UC Davis Pediatric Telemedicine Program. [Endnote 54]
Educating Families: Many parents do not have access to all the information they need to care for their children, especially when they live far from providers. Telemedicine home communities. A program in California, run by the USC University Center for Excellence in Developmental Disabilities and the Northern Sierra Rural Health Network (NSRHN), linked approximately 100 Spanish-speaking families of children with epilepsy in 15 different remote community sites, such as clinics and county offices of education, to a Spanish speaking pediatric epileptologist using videoconferencing, allowing families to learn about their children’s medical condition. The training is posted on various Web sites for families to access at a later date. [Endnote 55]
Supporting Families: Another important way ICT supports families is by helping families stay connected when a child must be hospitalized. Baby CareLink, operating in several states, is a multifaceted telemedicine program developed to enhance interactions between families, staff, and community providers and improve the health of low-birth- weight babies. Videoconferencing allows virtual visits and distance learning from a family’s home during an infant’s hospitalization. Once the infant comes home, technology is used to make virtual house calls and conduct remote monitoring. Through these technologies, parents gain the knowledge, skills, and support they need to take care of their babies at home. Studies have shown that the program has led to shorter hospital stays for these babies, resulting in improved outcomes for families and reduced costs associated with hospital stays. [Endnote 56]
Disease Management: Information and Communications Technology tools can help parents and children manage chronic health conditions. There are numerous online education and management tools for chronic conditions, such as childhood diabetes and asthma. There are also interactive programs for youth and parents to use with their providers. A program run by the San Mateo Medical Center in San Mateo County, California has helped children manage their asthma through the use of cell phones. Fifty children, ages 5 to 18 with moderate to severe persistent asthma, participated in a program in which they were given cell phones loaded with special software that allowed them to report information on their asthma symptoms, medications, and daily activities. The information was transmitted through a Web portal to asthma case managers who, in turn, responded back with advice on next steps, including a return phone call for coaching when children demonstrated risk. The information was also uploaded into a patient registry, which helped health staff see changes in the patients’ conditions over time and make adjustments to their treatment plan. Over a one-year period, these children experienced no emergency room visits or hospital stays due to asthma and they rarely came into the clinic for asthma-related medical treatment. This can be compared to an expected rate of one to two emergency room visits or hospital stays related to asthma for similar children with persistent asthma.
[Endnote 57]
Language Translation: With nearly 40 percent of Californians’ primary language being one other than English, ICT has greatly facilitated language translation at hospitals and clinics. [Endnote 58] Videoconferencing equipment allows health providers to bring translators to the exam room in a short amount of time without needing the translator to be physically present. For example, the Health Care Interpreter Network, operated by Northern California public hospitals, allows hospitals to share translation services. A centralized call center routes requests for interpreter services among participating hospitals using a secure high-speed data line dedicated to video and voice interpretation services.
[Endnote 59]
Supporting Rural Providers and
Providing Medical Education: Rural health care providers often have limited opportunities to interact with other providers and to participate in conferences and training without extensive travel. [Endnote 60] Videoconferencing is a simple way to keep rural providers connected and to help them fulfill continuing medical education requirements. For example, NSRHN has used its telehealth network to coordinate more than 2,400 medical education events trainings over a seven- year period for providers (including physicians, physician assistants, social workers, and nurses) who live and work in rural and remote areas of California. NSRHN has linked providers from multiple local community sites to medical experts from around the country to provide training on a range of health topics, allowing these child health providers to obtain the expertise and continuing education credits they need to best serve the patients in their care—training they may have gone without due to travel, resource, and time constraints. [Endnote 61]
Caring for Children Where They Are
Located: Educators and child development experts know that you cannot teach to an empty desk, nor can you teach children who do not feel well or cannot see the blackboard. Telemedicine complements and expands the capacity of schools and child care centers to address the health care needs of children. For example, the TeleKidcare program, a partnership between the Kansas University Medical Center and several schools throughout the state of Kansas, allows children and school nurses to interact with pediatricians via videoconferencing. School nurses are also equipped with digital otoscopes and electronic stethoscopes. Together, the technology allows the physicians to diagnose and treat, from a distance, a wide range of ailments. Forty-seven percent of consults have been for ear, nose, and throat concerns; 31 percent for behavioral health issues; 10 percent for eye-related complaints; 9 percent for respiratory ailments; and 3 percent for other diseases [Endnote 62]
Eighty-five percent of health consults occurred on the day that they were requested, allowing providers to catch and treat problems early. [Endnote 63]
A program of the University of Rochester Medical Center in Rochester, New York links children in inner-city child care centers to pediatricians using videoconferencing, specialized cameras, and electronic stethoscopes. [Endnote 64] After evaluating the child via telemedicine, the pediatricians make a diagnosis, prescribe treatments, and provide a treatment report to the child’s pediatrician when applicable. [Endnote 65] A survey of parents who participated in the program found that nearly 94 percent of problems managed by telemedicine would otherwise have led to a doctor’s office or emergency department visit. [Endnote
66] The program led to a 63 percent reduction in absences from child care. Finally, more than 91 percent of the parents of the children in the program stated that telemedicine allowed them to stay at work. [Endnote 67]
Telemedicine applications at schools can also be very effective in helping children manage common chronic health conditions, such as asthma, diabetes, and obesity. The Asthma Telemedicine Program, a two-year pilot project, connected 96 students in three San Francisco elementary schools with asthma experts at San Francisco General Hospital via videoconferencing. The experts assessed the student’s health, developed a disease management plan, and reviewed the student’s use of the peak flow meter and the medication inhaler. [Endnote 68] The program demonstrated significant improvements in children’s and families’ quality of life as it related to the child’s asthma and increased asthma knowledge for both children and their parents. [Endnote 69]
When Is Telemedicine Appropriate?
While telemedicine has helped many children access needed and high-quality health care, it is not always an appropriate substitute for in-person care. A face-to-face visit may be clinically necessary, for example, to perform a tactile exam or procedure or to more closely monitor a patient. [Endnote 70] At times, telemedicine consults may identify a need for follow-up care that cannot be appropriately provided through telemedicine. Telemedicine programs should be prepared to arrange for referrals in such situations. In addition, when high-quality services are available in person, telemedicine may not be a cost- effective option. Children and families may also prefer to receive services in person, even if they have to travel extensively to receive care.
Yet, telemedicine serves to complement in-person care and can fill a gap when needed care is not otherwise available. Payers often limit telemedicine reimbursement to such circumstances. For example, Medi-Cal imposes restrictions on the use of telemedicine by providing reimbursement only when a barrier to face-to-face care exists. Medi-Cal providers billing for telemedicine services, using the telemedicine billing code, must indicate that a barrier exists to a face-to-face visit. Providers are also asked to identify what that barrier is, such as a lack of a local provider, unacceptable wait time for a local provider, lack of a local provider willing to accept Medi-Cal, lack of a local provider able to address the patient’s language or cultural needs, lack of available transportation, or the necessary time off from work to see a provider face-to-face would create a financial or personal hardship. [Endnote 71]
What Are Some Essential Elements of
Successful Telemedicine Programs?
In order for clinics, hospitals, or other sites, such as schools and child care centers, to have successful telemedicine programs, several things need to be in place. Without these components, providers may invest in the necessary technology and equipment, only to find that it goes unused. Essential elements of a successful telemedicine program include the following.
The Telemedicine Champion: First and foremost, telemedicine programs need a champion. This is a person in the provider organization who is committed to building and sustaining the telemedicine program over the long term, incorporating it into the organization’s business plan. This person must recognize and articulate the need for and benefit of incorporating telemedicine into the organization’s infrastructure. Ideally, this person is someone who has authority to make decisions regarding organizational policies.
The Telemedicine Coordinator: A successful telemedicine program staffs a telemedicine coordinator. The role of the coordinator is to identify providers with whom to connect; schedule telemedicine visits and arrange referrals for any necessary follow-up care; ensure that relevant information about the patient, such as the history, lab work and test results, is sent to the hub or consulting doctor; and manage the technology and equipment, making sure the site has what it needs and that the equipment works. The coordinator needs to be well-supported with access
to training in areas such as technology and paperwork requirements. He or she also needs access to technical assistance and enough time to do his or her job well. [Endnote 72] While most coordinators are staffed at the spoke site, hub sites also need staff to ensure telemedicine visits are successful.
Incorporating Telemedicine into
Day-to-Day Activities: Telemedicine must be easy for patients and providers to use. By incorporating telemedicine into daily operations, it becomes second nature to patients and providers and is not seen as an additional burden. For example, the Telehealth and Visiting Specialist Center of Open Door Community Health Centers in Northern California equipped each of its exam rooms for telemedicine encounters so that specialists can see patients in person or via telemedicine using the same exam rooms, rather than requiring them to go to another room or building to conduct a telemedicine visit. [Endnote 73]
Technology and Support: For telemedicine interactions to be successful, the appropriate equipment and technology must be available. Clearly, telemedicine programs must have reliable equipment, such as videoconferencing equipment, cameras, and electronic medical devices. In addition, the telecommunications technology used must be able to reliably and securely transmit data at the speed and quality necessary for the interaction to be clinically accurate. Furthermore, providers and staff at both the spoke and hub must be trained in the appropriate use of the technology. Finally, technical support must be available to maintain the equipment and provide assistance when necessary.
What Are the Costs and Benefits of
Telemedicine?
As the field of telemedicine has grown, researchers have started to evaluate the value of telemedicine to health care systems and local economies, the quality of health care it facilitates, and patient and provider satisfaction. Much of what we know is based on small isolated studies. Longitudinal research on the long-term impact of telemedicine is needed. However, initial findings indicate that telemedicine has great potential to improve health care access and quality, create health care system efficiencies, and benefit local communities when it is implemented and applied appropriately.
Health System Costs: While the initial and ongoing investment required for telemedicine can be costly due to equipment, connectivity, and support needs, telemedicine has the potential to be on par with the costs of an in-person visit. [Endnote 74] This result, however, depends on volume: the higher the number of telemedicine visits at one site, the lower the costs per visit. For example, a cost analysis of the TeleKidcare program in Kansas found that when over 200 telemedicine consults were completed over a one-year period across ten school sites, the average cost per consult dropped to under $150, making them competitive with traditional office-based consults. [Endnote 75] Furthermore, as the cost of technology continues to decrease and more patients use this tool to access care, it is expected that telemedicine will become even more economical.
In addition, there is evidence that telemedicine can reduce overall costs to health and related systems due to better management of chronic diseases, fewer hospital visits, and health system transportation savings. A home telehealth disease management program in North Carolina saved $125,000 in four months by decreasing hospitalizations and emergency department visits. [Endnote 76] While definitive results are not yet available, the San Mateo cell phone project described above provides evidence of how technology can help with disease management and reduce costly emergency room and hospital stays for children. Furthermore, a telehome health care pilot project in California helped nurses avoid traveling 145 hours and 7,500 miles for 106 visits over a three-year period. [Endnote 77] In Tennessee, more than 62,000 miles of travel were avoided by using telehealth in over 1,000 home visits, saving $50.29 per home visit in mileage and nurse travel time. [Endnote 78] Finally, California could save a significant share of the nearly $140 million it spends annually for medical transportation in its Medi-Cal program by relying on telemedicine to care for patients, as appropriate, rather than paying for transportation for these patients. [Endnote 79]
Local Economies: Lack of health services in a community can result in loss of revenue to locally available ancillary health services and other local businesses within the resident’s home community, which can undermine the local economy. Telemedicine addresses this concern by allowing most services, except for the consult from a distant provider, to be provided within the community. For example, most rural hospitals and clinics have the ability to perform lab, x-ray, and other medical exams. Because telemedicine keeps the practice of health care local, there is a demand for these ancillary health services, which in turn creates jobs and other investments in the community. [Endnote 80] Over a two-year period, an inpatient telemedicine program in California generated $388,000 for the local intensive care unit by keeping children in the local community hospital rather than transporting them. [Endnote 81] A telepharmacy project in North Dakota reported contributing approximately $12 million to the local rural economy—including adding 40 to 50 new jobs—by using videoconferencing to allow pharmacists to supervise remote technicians in dispensing medication. [Endnote 82]
Patient Satisfaction: Surveys of parents and patients consistently demonstrate very high satisfaction with the telemedicine experience. Parents and patients believe the quality of care they receive is as good as in-person interactions with the health care provider and they feel their needs are being met. In addition, parent surveys have shown that parents appreciate not having to travel for long periods for an appointment, saving them time and allowing them to miss little or no work. [Endnote 83] Surveys from the Blue Cross of California Telemedicine Program of more than 1,200 patients over a six-year period showed approximately 90 percent of patients reporting high satisfaction after using telemedicine. [Endnote 84] Ninety-eight percent of parents of children who participate in the TeleKidcare program in Kansas report being “satisfied” or “very satisfied” with their child’s care. However, patients do express some concerns with telemedicine, such as ensuring privacy and not having the personal face-to-face interaction with the provider. [Endnote 85] Though telemedicine can provide the quality of care achieved in an in-person visit, ultimately, the patient and parent need to feel comfortable with the interaction for it to be a success.
Provider Satisfaction: Surveys of telemedicine providers also reflect high satisfaction. Providers report that they appreciate being able to examine test results on their own timetable (for example, via store-and-forward), and enjoy the educational opportunities telemedicine provides. [Endnote 86] According to provider surveys from the Blue Cross of California Telemedicine Program, telemedicine provided the information, advice, or expertise primary care providers needed to care for their patients and supported specialists to meet diagnostic and treatment needs. [Endnote 87] However, some providers express concerns about potential burdens, such as added work, costs, and training. The amount of time initially required to set up and adapt to telemedicine technology can be a barrier to gaining full support from healthcare providers. Furthermore, providers express concerns about the competency of the provider on the other end. [Endnote 88]
What Are the Challenges to Successful
Adoption of Telemedicine?
In addition to the challenges of providing the essential elements of telemedicine programs discussed earlier, there are a number of policy barriers and ambiguities preventing optimal deployment and utilization of telemedicine in California.
Reimbursement for Telemedicine
Services: There is not always a strong business case for providers to participate in telemedicine, primarily due to reimbursement issues. For example, both spoke and hub telemedicine providers incur multiple costs that are not fully reimbursed by Medi-Cal and other insurers, such as those related to equipment acquisition and maintenance, staffing, training, and telecommunications. In addition, some spoke sites enter into a financial contract directly with a specialist in order to ensure access to him or her. Oftentimes, they cannot seek reimbursement from a payer for these contracts. Payers’ telemedicine reimbursement policies may also be unclear or poorly administered and may not recognize the various costs associated with a telemedicine visit. As a result of such financial challenges, many telemedicine programs are only sustainable with grant funding, which is often narrowly tailored and time limited. For example, despite promising initial results, the Asthma Telemedicine Project mentioned above was not sustainable after grant funding ended due to a lack of insurance reimbursement for the telemedicine visits and school nursing shortages to help the children through the program. [Endnote 89]
Provider Shortages: While there is a shortage of pediatric subspecialists throughout California and the nation, there are even fewer who participate in telemedicine, leaving telemedicine coordinators scrambling to find providers with whom to link their patients.
Telecommunications Infrastructure: Many communities across the state do not have affordable access to a broadband connection of sufficient bandwidth to conduct certain telemedicine interactions successfully. This gap disproportionately affects low-income and underserved communities whose residents are in the greatest need of medical care and who, therefore, could benefit most from telemedicine.
Regulatory Environment: Legal barriers may discourage providers from using telemedicine to treat all children in need. For example, it can be challenging for telemedicine providers to obtain the licensing, credentialing, and liability protections they need to be able to treat a patient at a remote site, particularly if the patient is in another state. Providers may also have concerns about complying with state and federal anti-trust, anti-kickback, and self-referral rules.
Research Needs: To date, there has been very little research of sufficient reliability and rigor to demonstrate the impacts of telemedicine at the organizational, health system, or population levels. Such research is needed to better understand telemedicine’s benefits and where it should most suitably be deployed. Research is also needed to educate providers and payers about the value of telemedicine for their patients and their businesses.
Why Does Telemedicine Matter Now?
Schwarzenegger signed three Executive Orders to create a California eHealth Action Forum and state policy agenda, to establish a California Broadband Task Force (which includes a health care working group), and to accelerate the adoption of health information technology.
Each one of these efforts has the potential to promote the deployment of telemedicine to meet the unique health care needs of low-income and underserved children. They can also provide leverage for other promising e-health applications beyond telemedicine. For example, properly designed telemedicine connections between clinics and major medical centers can also provide for the exchange of electronic health records.
In addition, there has been particular attention paid in the last couple of years to increasing access to health care for children by decreasing the number of uninsured children and by increasing the number of and capacity of school-based health centers. As more children become insured (thus, removing a financial barrier to care), telemedicine can help ensure receipt of appropriate services by overcoming geographic and other economic barriers. Telemedicine can also help school-based health centers meet the health care needs of the children they serve.
A Policy Action Agenda to Extend
Appropriate Use of Telemedicine for
Update Medi-Cal policies to adequately
reimburse for telemedicine services. While California’s reimbursement policy for telemedicine services is fairly generous compared to other states, Medi-Cal policy could be improved. Medi-Cal does not reimburse for ancillary, but essential, services related to the telemedicine visit, such as setting up the equipment, coordinating and scheduling the visit, and telecommunications. One way California could improve its telemedicine reimbursement policy is by following the example of other states and programs in reimbursing for the costs associated with providing ancillary services related to telemedicine. North Carolina and Washington State, for example, provide a facility fee of $20 to the spoke site.
[Endnote 91] Blue Cross of California provides a facility fee to both the hub and spoke site. It also reimburses for telecommunication charges for live video consultations and telephone charges associated with telemedicine interactions. [Endnote 92] As mentioned above, the state has begun to explore such options.
Furthermore, California should regularly assess and update Medi-Cal reimbursement policies as new clinically appropriate telemedicine applications are developed. For example, California currently limits reimbursement for store-and-forward applications to teledermatology, teleophthalmology, and teleoptometry. However, store-and-forward in other health specialties, such as oral health, cardiology, and pathology, may be clinically appropriate, and reimbursement for their applications should be considered. Other states’ Medicaid programs, such as those of Arizona and Georgia, and other payers, such as Blue Cross of California, do not restrict Medicaid reimbursement to particular store-and-forward applications. [Endnote 93] Such policies should be adopted by Medi-Cal and other public and private payers.
Clarify and standardize current
reimbursement laws for telemedicine.
Ensure access to affordable broadband
access for rural and underserved communities.
Increase the number of pediatric
subspecialists who participate in telemedicine. Some pediatric subspecialists may not participate in telemedicine because they perceive it to be inconvenient or they are busy enough with their in-person patient load. However, some simply may not know about it or how to participate.
Efforts should be made to educate and incentivize subspecialists to participate in telemedicine. For example, telemedicine should be incorporated into medical school curricula, and, as this begins to happen, models should be shared throughout California and the nation. [Endnote 94] Telemedicine champions should continue to reach out to providers through their professional associations and Continuing Medical Education opportunities.
Furthermore, states and the federal government should explore incentives that encourage specialists to participate in telemedicine. For example, the National Health Service Corps (NHSC) provides loan repayment programs to health providers who practice in underserved areas. Since health providers in urban areas provide health care to patients in underserved areas via telemedicine, a program like the NHSC could provide a fi nancial incentive to these providers for time they spend caring for patients in underserved areas, whereas now the program requires participants to be physically located in the underserved area and provide full-time services. [Endnote 95]
In addition, stakeholders should continue to explore models for better deployment of pediatric subspecialists who do participate in telemedicine. [Endnote 96] For example, many spoke sites have relationships with one particular specialist making access to care difficult when that specialist is not available. However, another specialist may be available. Stakeholders should explore ways to pool specialty services so that there is a better distribution between supply and demand to optimize the state’s already limited supply of specialty services.
Invest in research. Far-reaching longitudinal research is needed to understand the most effective use of telemedicine in order to inform greater public and private investments and appropriate deployment of telemedicine as well as to provide standards for incorporating telemedicine into regular health care practice.
Explore solutions to legal and
bureaucratic barriers to extending telemedicine while ensuring patient safety
and high health care quality are maintained. One barrier, for example, concerns off-site credentialing for providers who want to practice medicine, beyond the provision of consultation services, via telemedicine at another hospital with which he or she is not already associated. To do this, he or she must be credentialed by that hospital. This credentialing process is expensive, burdensome, and lengthy. Finding ways to streamline it for providers, while maintaining quality assurance controls, would facilitate broader adoption of telemedicine. Cross-state licensure issues present similar challenges for providers seeking to treat patients in other states. California should work with its national partners to identify solutions for the practice of high-quality telemedicine across state lines.
Extend telemedicine to care for
children where they are located.
Moving Forward
As Information and Communications Technology continues to advance and new opportunities for remote health care emerge, this era provides a tremendous opportunity to ensure that children, particularly low- income and underserved children, across California and the nation benefit from these developments. Through a focused policy agenda, we can remove geographic and economic barriers to high-quality health care for millions of children and families. By building on the success of California’s telemedicine programs, while taking advantage of the momentum to advance health information technology, California can maximize appropriate and widespread use of telemedicine to improve the health of California’s children.
TCP would like to thank this project’s advisors, who
offered support and reviewed this document:
• Irene Alvarez, MPH, Program
Director,
• Frank Anderson, RN, BSN, Telemedicine
Development Director,
• Speranza Avram, MPA, Executive
Director, Northern Sierra Rural Health Network
• Jana Katz-Bell, MPH, Assistant
Dean,
• Bridget Hogan Cole, MPH, Director,
IT and Special Projects, Comprehensive Community Health Centers, Inc.
• Susan Ferrier, BSN, Director
of Telehealth, Northern Sierra Rural Health Network
• Erin Aaberg Givans, Executive
Director, Children’s Specialty Care Coalition
• Sunil Joshi, MBA, Director,
Product Development and Administration, Blue Cross of
•
Disabilities,
• Margaret Laws, MPP, Director,
Innovations for the Underserved,
• James P. Marcin, MD, MPH,
Director, Pediatric Telemedicine, Center for Health and Technology, UC Davis
Children’s Hospital
•
• Daniel Plotkin, eHealth
Program Administrator,
• Lisa Verschueren, MBA, Telemedicine
Program Manager, Council of Community Clinics
This Issue Brief was written by Jenny Kattlove with
Terri Shaw. Wendy Lazarus and Laurie Lipper provided strategic input throughout
this project. The authors express gratitude to colleagues at The Children’s
Partnership: April KirkHart and Beth Morrow, for their thoughtful feedback on
this report; and
Copyrighted photos on pages 6, 7, 10 and 11 used with
permission from UC Davis Health System. Expressed permission has also been
given of photo on page 3 for use in our printed material by the Blue Cross of
© 2008 The Children’s Partnership. Permission to
copy, disseminate, or otherwise use this work is generally granted as long as
ownership is properly attributed to The Children’s Partnership.
End Notes
Other Resources From The Children’s Partnership
E-Health Resources:
Meeting the Health Care Needs of
E-Health Snapshot: Harnessing Technology to Improve
Medicaid and SCHIP Enrollment and Retention Practices (May 2007)
Available at: http://www.childrenspartnership.org
Digital Opportunities Research and Resources:
Helping Our Children With Disabilities Succeed:
What’s Broadband Got To Do With It? (July
2007)
Helping Our Children Succeed: What’s Broadband Got To
Do With It? Number 1, 2nd Edition (March
2007)
“A Digital Opportunity Action Plan -
“Digital Opportunity for
Measuring Digital Opportunity for
Impacts of Technology on Outcomes for Youth: A 2005
Review (June 2005)
Available at: http://www.techpolicybank.org
Content By and for Underserved Communities:
The Search for High-Quality Online Content for
Low-Income and Underserved Communities: Evaluating and Producing What’s Needed
– An Issue Brief and Action Plan with Research Appendices (October 2003)
Online Content for Low-Income and Underserved
Americans: An Issue Brief (June 2002)
Online Content for Low-Income and Underserved
Americans, The Digital Divide’s New Frontier: A Strategic Audit of Activities
and Opportunities (March 2000)
Available at: http://www.contentbank.org
Parents Guides and Child Safety on the Internet:
“A Parent’s Guide to Online Kids: 101,” PowerPoint
Presentation (February 2006)
Available at: http://www.childrenspartnership.org
The Children’s Partnership (TCP) is a national,
nonprofi t organization working to ensure that all children—especially those at
risk of being left behind—have the resources and the opportunities they need to
grow up healthy and lead productive lives. The Children’s Partnership focuses
particular attention on the goals of securing health coverage for uninsured
children and ensuring that the opportunities and benefi ts of digital
technology reach all children and families. TCP’s newest program, “Defi ning
and Promoting an E-Health Agenda for Children,” aims to harness Information
& Communications Technology to improve the health of
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